‎Thousands unite for Sickle Cell awareness in memory of Dr. Akiyode

‎By Chioma Obinagwam

‎On October 8, 2025, the Olufunke Akiyode Sickle Cell Awareness Initiative for Africa (OASCA) hosted its inaugural symposium and awareness walk in Abeokuta, Ogun State, commemorating the legacy of Dr. Olufunke Akiyode, a fervent sickle cell advocate who passed away on September 20, 2024, at 47.

‎A statement sighted by Confiance News revealed.

‎Held at the Federal College of Education (FCE), Osi-Ele, and Federal University of Agriculture (FUNAAB), the event attracted a diverse crowd, including students, health officials, community leaders, and stakeholders committed to raising awareness about sickle cell disease.

‎Dr. Kunle Ashimi, former Chairman of the Nigerian Medical Association (NMA) in Ogun State, delivered a compelling keynote address titled “Reducing Sickle Cell Disease.” He underscored the critical role of genotype testing, early detection, and genetic counseling in curbing the prevalence of sickle cell disease, which affects an estimated 150,000 newborns annually in Nigeria.

‎Ashimi explained that the genetic disorder causes red blood cells to become sickle-shaped, obstructing blood flow and triggering severe, recurring pain.

‎He emphasized that the condition is inherited when both parents carry the sickle cell trait, making premarital genotype testing essential. Ashimi also condemned cultural myths labeling affected children as “Abiku” or “Ogbanje”—terms rooted in traditional beliefs about children who die young—clarifying that sickle cell is a manageable medical condition, not a spiritual affliction.

‎Highlighting advancements in treatment, Ashimi shared the inspiring case of Victoria Gray, the first person to undergo successful CRISPR gene-editing therapy for sickle cell disease, offering hope for a potential permanent cure. He called for integrating mandatory genotype screening into public health policies and urged government bodies, religious leaders, and educational institutions to champion awareness and prevention efforts.

‎Dr. Abiola Afolabi-Kayode, Olufunke’s elder sister, shared that OASCA was established to perpetuate her sister’s dedication to sickle cell education and community service. She thanked the host institutions and encouraged students to know their genotypes and advocate for health awareness. Mr. Sina Adefolahan, Executive Director of Community Education Advancement, reinforced the importance of early testing to alleviate the emotional and social toll of the disease.

‎Dr. Oluwaseun Aiyode, a sickle cell warrior and FCE Dean, noted that 25 people of Nigerian adults carry the sickle cell trait and stressed the need for robust community education.

‎Confiance News gathered that the event featured engaging quiz and dance competitions, including a quiz on Olufunke’s life, with winners receiving prizes. “Sickle Cell Student Warriors” were celebrated for their academic and personal resilience, making the symposium a powerful tribute to Olufunke Akiyode’s enduring legacy in breaking the silence around sickle cell disease.

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